Recent news - Resources
I would like to thank all contributors to the News-Resoures page. Please note that the full articles and/are applications are available through the provided links.
Dr. Eric Liu announces new "Home" for NET patients
The Healing Net - May 13, 2015
Dear friends,
I am so glad to announce that we are setting up a neuroendocrine
clinic in Denver, CO, at the Rocky Mountain Cancer Centers. It has been
a long journey and I thank you for your patience. I am eager to work with you to keep you all as healthy as possible.
(To read more of Dr. Eric Liu's letter and to see his video please visit the link posted on The Healing Net)
New – Carcinoid NETs Mobile App – Keeping Track of Your Health Just Got Easier!
Carcinoid Cancer Foundation
The Carcinoid Cancer Foundation is pleased to announce that a new unique tool for carcinoid/NETs patients and their caregivers is now available!
The Carcinoid NETs self-care tool, powered by Health Storylines™ allows you to track your mood, symptoms, and more, on the same timeline as your treatment. The Carcinoid NETs app makes sure you have an accurate, shareable record of your experience between physician visits, and helps you and your care team discover the treatment strategies that are working best for you.
With the Carcinoid NETs app, you can engage in a range of Health Tools that help you better manage your health:
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Set medication reminders so you don’t forget a to take them
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Track symptoms to monitor how you’re doing over time
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Remember important dates and events related to your health with a health calendar
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Note your health concerns so you don’t forget your questions the next time you visit your doctor
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Use a food photo blog to become more mindful of what you eat, and record if certain foods cause heath reactions
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Take a snapshot of all your important health documents and access them easily on the app anytime, anywhere
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Document your health and daily living with a journal
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Invite the people who care for you to connect as part of your Circle of Support. Share your progress with them in real time. Let them empower you with their support and encouragement, give you a boost when you need it, and celebrate your milestones.
Carcinoid NETs is now available on the Web, on Google Play™ and on the App Store℠ in the United States and Canada and is free to use. The Web version is accessible to US and Canadian users through any desktop computer or mobile device browser. International versions of Carcinoid NETs may be available in the future.
The Carcinoid Cancer Awareness Network (CCAN) has changed its name to The Neuroendocrine Cancer Awareness Network (NCAN). "Just the name has changed, our service and commitment has not. Watch for our new updated website to debut early 2015. And thanks for your support!" http://www.netcancerawareness.org/
Ipsen acquires OctreoPharm to boost its oncology presence
PM Live - May 2015
Ipsen has acquired the private German life sciences company OctreoPharm Sciences for $50m.
OctreoPharm focuses on the development of innovative radioactive labelled compounds for molecular imaging and diagnostics and therapeutic applications.
The German firm is developing a theranostic approach for the management of neuroendocrine tumours (NET) based on a somatostatin receptor antagonist peptide, supporting Ipsen's strategy to extend its oncology portfolio and presence within NET.
Ki67--What does that REALLY mean?
The Healing Net - May 14, 2015
Ki67 is a special stain that gives a sense of how aggressive a tumor is. The pathologist takes the biopsy or surgical specimen, prepares it, puts it on to a glass slide, stains it for this protein, and look at it under the microscope. It's a protein in cells that is involved in cell replication, so if many cells are expressing it, the tumor is growing quickly; if very few cells express it, then it is growing slowly. The pathologist needs to count about a thousand cells and determine the percentage of cells that are Ki67 positive. Therefore, the number that comes back should be a percentage from 0 - 100%.
Endoscopy as NET Diagnostic Tool
The Healing Net - April 14, 2015
Endoscopy is a very useful diagnostic tool. As with everything, it has its strengths and weaknesses. In general, it is a means of looking at the inside of a tube within your body. Most of the time it is used to look at the digestive tract (stomach, intestines, colon, rectum). You put it into the tube, inflate some air, and take a look around with the camera. If you see anything strange on the inside of the tube, you can pluck it off with a biopsy. If it's small enough, you may be able to remove it completely.
Surgery and Treatment Options for NET Cancers
What are the surgical and treatment options for carcinoid and neuroendocrine tumor patients? For patients with tumors that have spread to the liver which therapies should be used to improve quality and quantity of life? How do patients benefit from clinical trials? There is an explosion of technologies coming not only in the diagnostics but also in the treatments of these rare cancers. View the video below:
Video Courtesy of
The Carcinoid Cancer Foundation
Dr. Liu's Zebras
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